Asia

She got her master’s degree and raised four children, even as she battled a painful, incurable skin disease

She said her condition worsens whenever she gets angry, upset or stressed, or when the weather is hot, so she is often unable to join social activities such as weddings.

“Even though I am usually strong and positive, there are times when I feel down and just want to isolate myself,” she added.

“Sometimes, when I have flares, and the younger kids want to hug me, sit near me, or touch my arms or back, I will tell them not to come close to me. I am afraid my pustules will break,” she said.

The love, acceptance and understanding of her family has been vital in getting her through tough times, she said.

When I have flares, I gather my kids and ask them to help me apply cream. They all want to help, and don’t feel disgusted or annoyed. They would even kiss my pustules and touch them gently. Even though I am sick, I feel better because of their care for me,” she said.

“Generalised pustular psoriasis is unpredictable – it can get better or worse. I have come to accept it. What is most important is family support,” she said.

Source: CNA

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